Presenters

Register for the Universal Design Summit 6

2017 Keynote Speakers


Judith HeumannJudith Heumann

Former Special Advisor on Disability Rights, US State Department under President Barack Obama

About Judith Heumann

Judith Heumann is an internationally recognized leader in the disability community and a lifelong civil rights advocate for disadvantaged people. Heumann is currently a Senior Fellow at the Ford Foundation.

Public Service

Most recently, Heumann served as the first Special Advisor for International Disability Rights at the U.S. Department of State from 2010 – 2017 under the Obama Administration.

Prior to this Heumann served as the Director for the Department on Disability Services for the District of Columbia from 2007-2010, where she was responsible for the Developmental Disability Administration and the Rehabilitation Services Administration.

Heumann served as the World Bank’s first Adviser on Disability and Development from 2001-2006. In this position she helped the Bank include disability in discussions with client countries.  Heumann improved policies, programs, and projects that allow disabled people around the world to live and work in the economic and social mainstream. She was Lead Consultant to the Global Partnership for Disability and Development 2006-2007.

Heumann served more than 8 million Americans with disabilities in her role as the Assistant Secretary for the Office of Special Education and Rehabilitative Services in the Department of Education in the Clinton Administration from 1993 through 2001. She was responsible for the implementation of legislation at the national level for programs in special education, disability research, vocational rehabilitation and independent living.

Early Years

Heumann co-founded the World Institute on Disability with Ed Roberts and Joan Leon and served as its Deputy from 1981-1993.

She moved from Brooklyn, New York to Berkeley to attend graduate school and helped to cofound the Berkeley Center for Independent Living where she served as its Deputy Director and then on its Board from 1973-1993.
Heumann graduated from Long Island University in 1969 and received her Master’s degree in Public Health from the University of California at Berkeley in 1975. She was the first teacher to be hired by the New York Board of Education after suing to obtain her license.

Awards

  • Henry B. Betts Award in recognition of efforts to significantly improve the quality of life for people with disabilities,
  •  Max Starkloff Lifetime Achievement Award;
  • InterAction Disability Inclusion Award;
  • Honorary Doctorate of Humane Letters from Long Island University in Brooklyn;
  • Honorary Doctorate of Public Administration from the University of Illinois, Champaign;
  • Honorary Doctorate of Public Service from the University of Toledo.

Heumann has worked on the domestic and international front to advance human rights for people with disabilities for more than 45 years. She has been active with Disabled Peoples’ International, Rehabilitation International and numerous Independent Living Centers throughout the world.

In addition to her fellowship at the Ford Foundation, Heumann social media project, The Heumann Perspective, is intended to broaden and spur discussions on the intersectionality of disability rights.

Learn more about Judith


 

Valerie FletcherValerie Fletcher

Executive Director, Institute for Human Centered Design

Valerie Fletcher has been Executive Director since 1998 of the Institute for Human Centered Design (IHCD).  Fletcher writes, lectures and works internationally. She currently oversees projects ranging from the development of a new national website on accessibility and inclusive design in cultural facilities for the National Endowment for the Arts to a wide range of consultation and design services to public, and private entities in the US and globally. She created the IHCD User/Expert Lab which has over 200 people engaged in the evaluation of places, products and services. Her research focus is integrated social and environmentally sustainable solutions for multifamily housing, healthcare, culture, workplaces, and the public realm. Her research focus is integrated social and environmentally sustainable solutions for classrooms, workplaces, cultural venues and the public realm.

Learn more about Valerie

 


Hansel BaumanHansel Bauman

Architect & Adjunct Faculty, Gallaudet University – Science Labs, the Sixth Street Development & DeafSpace

 

Bauman is an architect currently serving as the Gallaudet University Campus Architect and is the founding partner of Hansel Bauman architect + planner (hb a+p). Over twenty years, Mr. Bauman has developed a diverse, international portfolio of projects that enhance cultural and sensory experiences within buildings for academic, civic, industrial, and residential uses.  His work also includes urban and campus planning projects in the United States and China.

 

Learn more about Hansel

 


Anna LeaveyAnna Leavey

 Director of Construction, Gateway Arch Foundation / CityArch River Foundation

Anna Leavey is the Program Manager for CityArchRiver 2015 Foundation. CityArchRiver is the lead organization on
the construction projects that will connect Downtown St. Louis with the Arch grounds and riverfront. Prior to joining CityArchRiver
Anna was Director of Construction for BJC HealthCare. She joined BJC in 2006 and transitioned to the CityArchRiver 2015 Foundation
at the end of 2013. Anna is overseeing the private funding portion of the $380M project, including a conservancy program that
extends past the completion of construction.

Anna holds a Masters Degree in Construction Management from Washington University in St. Louis, a Masters of Architecture
from the same institution and a Bachelor of Arts from Smith College. In addition she studied architecture at University College
London and participated in a summer program at the Harvard Graduate School of Design. She is a member of the Construction
Management Association of America, the American Institute of Architects, holds a Missouri Real Estate Salesperson-Broker license,
and is a Master Gardener.

 


Vern RemigerVern Remiger

Founder & CEO, Remiger Design Architecture Firm – Architect for CityArch River Project

Vern Remiger is President and Founder of Remiger Design, an Architecture, Interior Design and Planning firm providing professional services to commercial, institutional and public clients. Vern holds a Master of Architecture and Bachelor of Arts Degrees from Washington University in St. Louis and has been a part of the local Architectural community for close to 40 years. Along with his professional practice, Vern is a Past President and Board Member of AIA St. Louis, a former Board Member and now Life Trustee of the Boys and Girls Clubs of Greater St. Louis, a former Board and Executive Committee Member of the Regional Chamber and Growth Association in St. Louis and is currently involved with the Gateway PGA Reach Program. In addition to the firm’s role as Design Coordinator for the Gateway Arch Park Foundation, Remiger Design has completed projects locally and nationally for Cass Information Systems, MasterCard, Mallinckrodt Pharmaceuticals, McCormack Baron Salazar, Stifel Financial, Centene Corporation and Washington University in St. Louis.

 

 


2017 Presenters

Marcie Roth

Marcie Roth is a global expert on whole community inclusive emergency preparedness and disaster response, recovery and mitigation.  She is widely recognized as a strategic and transformative governmental and non-governmental leader with a 40 year record of success for advancing equal access and inclusion initiatives, yielding promising practices and measurable outcomes benefitting the emergency management needs of individuals, families and communities.

Roth is the President of Inclusive Emergency Management Strategies LLC and CEO of the National Partnership for Inclusive Disaster Strategies, providing global disability rights leadership through a variety of contracted and collaborative projects committed to a shared mission of disability rights, equal access and full inclusion for the whole community before, during and after disasters. Her primary focus is on building a global collaborative of community leaders and emergency management stakeholders working together to prepare for emergencies and recover from disasters. Her expertise includes providing tools, resources, training and technical assistance to prepare for, respond to, recover from and mitigate all hazards, optimizing universal accessibility as a critical lifesaving and life sustaining foundation for community-wide success.

Ms. Roth recently concluded a 7.5-year presidential appointment to the U.S Department of Homeland Security Federal Emergency Management Agency (FEMA), serving as Senior Advisor to the Administrator and congressionally mandated Disability Coordinator for the agency. While at FEMA, she established the Office of Disability Integration and Coordination (ODIC), serving as its Director. Under her leadership, ODIC led national transformation towards integrating the access and functional needs of the whole community throughout emergency preparedness and disaster response, recovery and mitigation.

From 2011 until her departure in 2017, Ms. Roth was charged with establishing and building FEMA’s cadre of almost 300 disability integration specialists and managing over 400 disaster deployments, frequently serving as lead advisor to the presidentially appointed Federal Coordinating Officer and collaborating with affected state emergency management leadership and stakeholder groups.  She also led the work of the Department of Homeland Security Interagency Coordinating Council on Emergency Preparedness and Individuals with Disabilities, established through a presidential executive order in 2004 and she has represented the U.S. government internationally as an expert on whole community inclusive global disaster risk reduction since 2012. Roth is recognized as a global authority on disability inclusive disaster risk reduction serving as a leader throughout the development and implementation of the post-2015 Global Development Agenda and the Sendai Framework for Disaster Risk Reduction 2015-2030.

Ms. Roth is a Harvard University Kennedy School of Government Senior Executive Fellow, and holds a BS in Public Safety Administration from the University of Maryland University College. She was recently named Handicap International’s 2017 Hilton Foundation Fellow and she is currently leading a global project to address the disproportionate impact of climate change on individuals with disabilities and their communities.

Marcus Adrian

Marcus is an Architect and Managing Principal of Mackey Mitchell Architects, and dedicates his career to the design of learning and care environments for special needs populations. Through his design, volunteer, and research work, Marcus has collaborated with over three dozen organizations that offer services to people with a wide range of developmental needs. Most of the facilities he has designed serve some population of children who are multi-disabled,requiring collaborative approaches between multiple therapy disciplines.

In 2014 he collaborated in joint research with clinical faculty from SLU’s Department of Communication Sciences and Disorders, studying classroom improvements at an underprivileged school in North City, and later co-presented the work at ASHA’s National Conference. In 2009, he was recruited by ASHA and the US Access Board to deliver a US Congressional Briefing on classroom acoustics in support of the 21st Century High-Performing Schools Act, which passed the house later that week.

Zully JF Alvarado

President, Causes for Change, Gary, IN

Zully JF Alvarado is an educator, trainer, public speaker, entrepreneur; international leader known and recognized as an advocate on the rights of children, women and persons with disabilities. She is the founder and president of Causes for Change International: a non-profit, volunteer, charitable organization. For the past two years has been partnering with City of Gary’s Miller Neighborhood Spotlight in applying and advocating for the application of universal design principles in communities.

Jessica Renslow (co-presenter with Zully Alvarado)

A native of Gary Indiana, Jessica Renslow’s work is an intersection between advocacy, filmmaking, multimedia translating and non for profit management. A 2003 Ball State University, she was chosen as a member of the Japanese Exchange Teaching Program where she stayed until 2006. From 2006-2015 she worked a variety of film/ TV production gigs in Hollywood. 2010 marked the worldwide premiere of her directorial debut at the Women in Arts Festival (Los Angeles). After passing the California Teachers of English Learners Test she decided to pursue her MA in Education from California State University Los Angeles. Her graduate studies centered on instructional design, assistive technology and leadership. She translated and adapted the feature script, “Spectacled Tiger.” It placed first at the 2013 Sundance International Filmmaker Awards. 2015 marked her return to Northwest Indiana to helm the first Neighborhood Spotlight initiative in Indiana. Gary’s Miller Spotlight received the 2016 Outreach American Planning Award for the State of Indiana. As a community builder she has championed the creation and implementation of community based goals that improve the quality of life for all her constituents.

Amy Barnes and Mia Maksimowicz

Amy Barnes is presenting alongside her daughter, Mia Maksimowicz, a 16 year old with spinal bifida.  Working as a Realtor for 14 years selling residential and commercial property, Amy is also a social entrepreneur focused on promoting social awareness through the arts, culture and active living.  Mia is a high school student interested in pursuing a career in the arts.

Living in an inaccessible home, the design deficiencies impact the safety, independence, time management and quality of life of our entire family and all with limited mobility who may visit. These barriers were created by standard design and construction practices and have a notable impact on our social interactions. Advocating for UD and equal rights for people with disabilities, we want to help raise the standards with our efforts as citizens of the US concerned about our future and that of our country.

Mary Ellen Daniel

Occupational therapist, certified low vision therapist, certified aging in place specialist and technology trainer at the Center for Vision Rehabilitation and Research, Henry Ford Health System. Principal site evaluator, photographer and co-author of reports for 2 SiteWise grant projects. Work experiences include therapist, case manager and consultant in inpatient, outpatient and community mental health, Rehab Services Director, and consultant in long term care. Active in community outreach and presentations to local senior and low vision support groups.  Has presented at national conferences of AOTA, AER, AAO and Envision.

Louie Delaware & Erik Listou

Louie Delaware & Erik Listou are the Founders of the Living in Place Institute, an educational company focused on making all homes accessible and safe.

Craig Eichelman

AARP Missouri State Director
Craig Eichelman is State Director for AARP in Missouri and manages a results oriented team that enables AARP to achieve national, state and community level objectives. He oversees AARP’s legislative priorities, communication, outreach and education efforts, volunteer engagement and media relations. Craig is a native of Chicago and he and his wife Mindy reside in Kanas City, MO.

Adam Fromme

Adam Fromme is a current MFA Candidate in Design Research and Development (with a specialization in aging) in the Department of Design at The Ohio State University, Columbus, OH.

Current research activity focuses on successful aging, intergenerational relationships, and public space design. At the intersection of these three areas is the opportunity for community engagement. Participation in this “public life” is the hallmark of integration and independence. Recent research areas include designing for older adults, the utilization of public spaces, and the future of transportation and mobility.

His work experience is in environmental graphic design, hospitality and health care design, and visual systems. He also started the design consultancy firm Wayfind Design LLC in 2014.

 

Gina Hilberry

Ms. Hilberry has more than 25 years of experience as a practicing architect. Her firm provides architectural services for historic preservation, residential and commercial properties, schools, and institutional projects.

Gina specializes in accessibility and inclusive design. She served the Access Board on the Public Rights-of-Way

Advisory Committee and the Technical Assistance Manual for PROW group. She is the Vice-Chair and UCP representative on the ANSI A117.1 Standards Development Committee, Chair of the Scoping Task Group and Co-Chair of the Wheeled Mobility Task Group. She is also Chair of the Advisory Council for the City of St. Louis Office on the Disabled and past President of the St. Louis Chapter of the AIA.

Gina provides consulting services to the U.S. DOJ, National Park Service, the Missouri Commission on Human Rights, the City of St. Louis, the Missouri Botanical Garden and multiple architectural and engineering firms. She is staff consultant and architect for the Institute for Human Centered Design in Boston, MA. Gina lectures regularly on inclusive design and on real world implementation of accessible design features.

Ken Jernberg

With a corporate background in residential construction, land development, and real estate, Ken Jernberg is the Co-Founder and Principal of Transitional Living Company and the Group Leader for Realty TLC of Keller Williams Chicago-Lincoln Park. A licensed Real Estate Instructor for both pre-license and continuing education, Ken earned the SRES® (Seniors Real Estate Specialist) designation and the Military Relocation Professional (MRP) certification from the National Association of REALTORS®. Ken is also co-developer of the Home Accessibility Property Specialist designation, an extensive curriculum designed to educate both real estate professionals and home builders about accessible homes. As an SRES® designee, Ken is trained and sensitive to the financial and lifestyle needs of sellers and buyers age 50 and better. He is equipped to help older persons with all facets of “rightsizing,” home renovations and remodeling, real estate sales, and move management.

 

Teresa Kelly

Councilmember with the City of Roeland Park, KS and Co-Chair of the First Suburbs Coalition with the Mid-America Regional Council.

Anne Marie Kinerk

Architect
Anne Marie is an architect with over 30 years experience in planning, design, and project management.

Richard Lehner & Armando Tobias

LCM Architects, Chicago, IL
Armando Tobias, AIA, is an architect with LCM Architects. Armando has been involved in multiple Universal Design projects, understanding both the design challenges and the construction challenges involved.

Richard Lehner, AIA, is a partner with LCM Architects. Richard has been the partner in charge for multiple projects designed according to Universal Design standards. Richard understands the client relationship and learning curve involved in educating clients as to the benefits of Universal Design.

Clarence Olsen

Clarence Olsen, AIA, NCARB, has formed his career on enhancing the urban condition of the city. Clarence has helped shape accessible environments for the past seven years as project leader at Cohen Hilberry Architects in St. Louis, MO. Along with a general architectural practice, he has expert knowledge in accessible and universal design, and is passionate about creating spaces that promote social diversity and inclusivity. Project focus includes public right-of-way improvements, new construction developments, revitalization projects, and neighborhood and campus master planning.

Clarence is a registered architect and a member of the AIA. He holds a MArch from The Boston Architectural College, and a BTArch from Washington University in St. Louis. He is a Park Commissioner in University City where he oversees city wide capital improvement projects in the parks and ongoing park operations.

Brittany Perez

Occupational Therapist, Research Associate Center for Inclusive Design and Environmental Access, University at Buffalo, Buffalo, NY

Brittany Perez OTD, OTR/L is an occupational therapist and Senior Research Associate at the Center for Inclusive Design and Environmental Access (IDeA), located at the University at Buffalo, where she manages usability testing and consulting services for products and technology. Brittany is a project manager in both the Rehabilitation Engineering Research Center on Universal Design and the Built Environment (RERC-UD) and the RERC on Accessible Public Transportation. She co-founded and co-directs the local AARP Age Friendly Network in Erie County. She is an Assistant Research Professor in the School of Architecture and Urban Planning and an Adjunct Instructor in the Department of Occupational Therapy in the School of Public Health and Health Professions at UB. Brittany is a licensed and registered occupational therapist and has clinical experience working in adult physical rehabilitation.

Amanda Primm

Access & Technology Specialist, Southwest Center for Independent Living, Springfield, MO My name is Amanda Primm, and I am the Access and Technology Specialist at the Southwest Center for Independent Living (SCIL,) a CIL that serves 8 counties in Southwest Missouri.  I have a B.S. in Gerontology and a B.S. in Psychology, with experience in teaching Psychology 101. I initially started at SCIL as an Access Advocate, and surveyed for and designed approximately 85 ADA compliant residential wheelchair ramps. I have recently moved into the technology department, and assist with the Telecommunications Access Program, demonstrations of adaptive equipment, and tours of our Universal Design model apartment. I have recently finished my final credits for my certification as an ADA Coordinator through the ACTPC program at the Great Plains ADA Center.

Sharon Smith

Sharon Smith has worked at the Missouri Historical Society for almost 28 years. Interestingly, when Sharon began in 1989, the Jefferson Memorial Building did not yet have ramps into the building. They would comply soon after the passage of the ADA.

Sharon has been privileged to work on many exhibits in her tenure as curator. One that she says changed her life personally and professionally, was curating the exhibit, “The Americans With Disabilities Act: 20 Years Later.” The exhibit won a 2011 Award of Merit from the American Association for State and Local History. In the last few years, Sharon has attended several professional museum conferences, often taking advisors to the ADA exhibit with her to speak, including Colleen Starkloff and Naomi Soule. Speaking at the various conferences was a way to advocate for more accessible and inclusive exhibits across the museum field. Since the ADA exhibit, she has become an active member of the History Museum’s reorganized Accessibility Committee, which works for greater accessibility in exhibits and throughout the museum. In 2017, the Missouri History Museum has received Paraquad’s Shine the Light Award and the American Alliance of Museums’ first-ever Award for Diversity, Equity, Accessibility, and Inclusion.

Kari Turner

Principal and Architect, Pivot Architecture, Eugene, OR

Kari Turner understands that transit systems are an indispensable part of strong communities. She is passionate about community access for all and believes that well-planned transit facilities bring people of all backgrounds together. As an architect, Kari has designed transit stations in Oregon, Washington, Utah, and California. She strives to create stations that are inspirational and functional for both employees and system users. She integrates Universal Design and Crime Prevention Through Environmental Design (CPTED) strategies into all of her projects.

Doug Walter

Architect Doug Walter heads a nationally known residential design firm (www.dougwalterarchitects.com) that is celebrating its 39th year.  He is also currently a contributing editor for Professional Remodeler magazine, and on the Kitchen & Bath Business magazine Editorial Advisory Board.   He served on the task force in 2000 that created the CAPS certification for the National Association of Home Builders, and wrote several chapters in their curriculum, and has been invited to be on the task force charged with revising the NKBA “Kitchen & Bathroom Planning Guidelines” for 2018.

A winner of over 130 local and national design awards, Doug’s work has appeared in over 225 articles, and he speaks frequently on lighting and daylighting, accessibility, kitchen & bath design, architectural compatibility, and  historic preservation, to professional audiences, including the American Institute of Architects, the National Association of Home Builders, the National Kitchen and Bath Association,  the National Green Building Conference,  the American Planning Association, the Occupational Therapy Association of Colorado, and several prior Universal Design Summits.

A firm believer in community service, Doug served on the Denver Landmarks Commission, the state’s Capitol Building Advisory Committee and the board of the Remodeler’s Council of the HBA Metro Denver, and has provided pro bono services to Habitat for Humanity, Easter Seals, Jewish Family Service, and the Home Builders Foundation.

Jeni Finnigan

Jeni Finnigan, OTR/L, CAPS is an occupational therapist with a Certified Aging in Place Specialist designation from the National Association of Home Builders.  She earned her degree in Occupational Therapy from the University of Oklahoma Health Sciences Center in 2000.  Jeni has spent her career in various practice areas including hand therapy, acute care, and agency work prior to starting her own business. Jeni is the owner of Unbounded Spaces, a company that specializes in universal design, home/environmental modifications and aging in place. She firmly believes the thoughtful and intentional creation or modification of spaces, with the person and occupation as the focus, can increase function, improve independence, and ensure the safety and support all while maintaining a graceful environment in which to live, work, and play.

She is currently working toward the Specialty Certification in Environmental Modification (SCEM) from AOTA and plans to sit for the Associate Kitchen and Bath Designer (AKBD) exam from the National Kitchen and Bath Association (NKBA) in 2018.

Jeni is a member of the American Occupational Therapy Association, Occupational Therapy Association of Colorado, Home Modification Occupational Therapy Alliance, the National Kitchen and Bath Association and Age Safe America.

She is honored to volunteer in her community by serving on the Project Fulfillment Committee of the Home Builders Foundation (HBF). The HBF completed over 75 projects in 2016 all related to accessibility and the promotion of independence for people with disabilities.

Debra Young, M.Ed., OTR/L, SCEM, ATP, CAPS, FAOTA

Owner, EmpowerAbility® LLC

Debra Young, owner of EmpowerAbility® LLC—an occupational therapy consultancy—is an award winning certified specialist in environmental modifications, aging in place, and assistive technology. Debra is a Fellow of the American Occupational Therapy Association (FAOTA) and has earned the Specialty Certification in Environmental Modifications from the American Occupational Therapy Association (AOTA)—both are distinctions accomplished by less than 1% of occupational therapists nationally. She is an elected Director to the current AOTA Board of Directors and is the 2014 recipient of the AOTA Recognition of Achievement Award for notable contributions to the profession and its consumers in the environmental modifications specialty area of practice. Debra has published and presented on local, state and national levels and holds an adjunct teaching position with Philadelphia University instructing post professional doctoral degree and Masters level occupational therapy students on environmental modifications, assistive technology, accessibility and livable communities.